Details about cookies on pnhinterestgroup.org

International PNH Interest Group puts small files (known as ‘cookies’) onto your computer to collect information about how you browse the site. Find out more about the cookies we use, what they’re for and when they expire.

Cookies that measure website use (statistics)

Google Analytics

We use Google Analytics cookies to collect information about how you use pnhinterestgroup.org. You can opt out of Google Analytics cookies by installing the Google Analytics Opt-out Browser Add-on. You can read Google’s overview of data practices within Google Analytics. Our Privacy Notice has more information about the data we collect using Google Analytics cookies and information we receive from other digital services. We use the following Google Analytics cookies on pnhinterestgroup.org:

Name
Purpose
Expires
_ga_<unique id>
These help us count how many people visit pnhinterestgroup.org by tracking if you’ve visited before
1 year
_ga, _gid, _gat
These help us count how many people visit pnhinterestgroup.org by tracking if you’ve visited before
2 years

Crazy Egg

Crazy Egg’s uses cookies to track how users interact with the site using heat maps to show elements that users engage with the most as well as monitoring traffic:

Name
Purpose
Expires
ce_*
Sets up users heat map tracking on first site visit.
Session
_ce_
Manages crazy egg API functionality to track user inputs as well as checking returning visitors.
Session

Strictly necessary cookies (functional)

Cookies message

You may see a banner when you visit pnhinterestgroup.org  inviting you to accept cookies or review your settings. We’ll set cookies so that your computer knows you’ve seen it and not to show it again, and also to store your settings.

Name
Purpose
Expires
CookieControl
Used by the Civic Cookie Control consent system to store the accepted cookie policy ID.
1 year

Google reCAPTCHA cookies

In some limited circumstances, we may use Google reCAPTCHA to help us detect fraudulent activity. We also use Google reCAPTCHA for spam prevention. Some of the data collected by reCAPTCHA cookies is forwarded to Google. See the Google Privacy Policy and the Google Terms of Service.

Name
Purpose
Expires
rc::c
We use Google reCAPTCHA on this site to make sure that information (for example, in forms) is entered by a human and not by automated software.
session
rc::b
We use Google reCAPTCHA on this site to make sure that information (for example, in forms) is entered by a human and not by automated software.
session
rc::a
We use Google reCAPTCHA on this site to make sure that information (for example, in forms) is entered by a human and not by automated software.
persistent

Other essential cookies

Essential cookies keep your information secure while you use our website. We do not need to ask permission to use them.

 

Name
Purpose
Expires
wpe-auth
Used to store logged in user status
session
wp_lang
Used by WordPress to store the users language preferences
session
wp_data_user_*
Used by WordPress to provide administrative functionality
various
wp_consent_statistics
These help us track the type of consent you have provided and what type of cookies the website will then use.
30 days
wp_consent_marketing
These help us track the type of consent you have provided and what type of cookies the website will then use.
30 days
wp_consent_preferences
These help us track the type of consent you have provided and what type of cookies the website will then use.
30 days

Become a member

If you are a clinician, academic, and/or researcher involved or interested in PNH research or care and are not currently an IPIG member, please considering applying for membership. There are no joining fees or membership dues. Learn more on our membership page and/or email your membership questions to [email protected]

Apply for membership