Resources

Patient and Professional Resources

PNH Patient Organizations

If you are a person who has been recently diagnosed or who is living with Paroxysmal Nocturnal Hemoglobinuria (PNH), or a family member, loved one, or care giver, you can find more information about PNH.

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Patient and Professional Resources

Professional Societies

Health care professionals who are interested in PNH will find other professional societies having interests similar to IPIG’s by selecting “Professional Societies” in the heading above.

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Help us expand our Resources

If you have information or resources you’d like to submit for inclusion on our IPIG website, our board will be happy to consider your submission.

Find out how to submit a resource