About us

IPIG is dedicated to enhancing and expanding professional knowledge about paroxysmal nocturnal hemoglobinuria (PNH) and related disorders in order to improve patient treatment and care.

Our goals

The International PNH Interest Group (IPIG) is the only global professional society that focuses specifically on PNH and its treatment.

Our Corporate Partners

The International PNH Interest Group is a recognized by the US Internal Revenue Service as a not-for-profit organization. We are grateful to our Corporate Partners, who support our work.

Board of Directors

The members of the International PNH Interest Group Board of Directors are recognized experts in the care and management of PNH. Together, they bring to IPIG a vast depth and breadth of knowledge about PNH and related conditions.


The International PNH Interest Group currently serves more than 425 members in 54 countries on six continents, including most of the world’s preeminent clinicians and researchers who are at the forefront of PNH patient care and research. If you are interested in becoming a member, please read this page to learn if you are eligible for membership.

Help us expand our Resources

If you have information or resources you’d like to submit for inclusion on our IPIG website, our board will be happy to consider your submission.

Find out how to submit a resource