Our goals

The International PNH Interest Group (IPIG) is the only global professional society that focuses specifically on PNH and its treatment.

The International PNH Interest Group works to:

  • Promote global public health by advancing the optimal care and treatment of people diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) and related conditions.
  • Provide instruction, information, and training to health care providers and other interested parties around the globe on the diagnosis and treatment of PNH and related conditions
  • Educate the public, policy leaders, and other stakeholders globally on the need for research on new and effective treatment options for PNH and related conditions, and the need for improved patient access to approved therapies and treatments.

Become a member

If you are a clinician, academic, and/or researcher involved or interested in PNH research or care and are not currently an IPIG member, please considering applying for membership. There are no joining fees or membership dues. Learn more on our membership page and/or email your membership questions to [email protected]

Apply for membership