Our goals

The International PNH Interest Group (IPIG) is the only global professional society that focuses specifically on PNH and its treatment.

The International PNH Interest Group works to:

  • Promote public health by advancing the optimal care and treatment of people diagnosed with paroxysmal nocturnal hemoglobinuria (PNH) and related conditions.
  • Provide instruction, information, and training to health care providers and other interested parties on the diagnosis and treatment of PNH and related conditions
  • Educate the public, policy leaders, and other stakeholders on the need for research on new and effective treatment options for PNH and related conditions, and the need for improved patient access to approved therapies and treatments.

Help us expand our Resources

If you have information or resources you’d like to submit for inclusion on our IPIG website, our board will be happy to consider your submission.

Find out how to submit a resource