Cookie Policy

Find out more about how we use cookies

How we use cookies

Cookies are small text files which are served to your browser for your computers to store.

We use cookies to:

  • Improve your browsing experience (eg. saving customisation settings)
  • Collect anonymous data to improve the website (eg. device/browser usage, page visit routes)

Knowing how our users visit and use our website is how we know where to improve. We do not use cookies for advertising purposes, or pass user data to any other organisation or website.

All cookies used on this site are listed below. If you do not wish these cookies to be tracked you can disable them in your browser, but there is a possibility that this may negatively affect your experience whilst using the website.

Cookies in use on this site

Adobe Fonts

Marketing/Tracking

Usage

We use Adobe Fonts for display of webfonts. Read more

Sharing data

For more information, please read the Adobe Fonts Privacy Statement.

Marketing/Tracking

Name
Adobe Fonts API
Expiration
expires immediately
Function
Read user IP address

Google reCAPTCHA

Marketing/Tracking

Usage

We use Google reCAPTCHA for spam prevention. Read more

Sharing data

For more information, please read the Google reCAPTCHA Privacy Statement.

Marketing/Tracking

Name
rc::c
Expiration
session
Function
Read and filter requests from bots
Name
rc::b
Expiration
session
Function
Read and filter requests from bots
Name
rc::a
Expiration
persistent
Function
Read and filter requests from bots

Website

Functional

Usage

Sharing data

This data is not shared with third parties.

Functional

Name
wp-settings-time-1
Expiration
3 months
Function
Settings

Google

Marketing/Tracking

Usage

Sharing data

This data is not shared with third parties.

Marketing/Tracking

Name
__Secure-3PSIDCC
Expiration
2 years
Function
Profiles the interests of website visitors to serve relevant and personalised ads through retargeting.
Name
__Secure-3PAPISID
Expiration
2 years
Function
Targeting cookie

Crazy Egg

Statistics (anonymous), Marketing/Tracking

Usage

We use Crazy Egg for visitor tracking.

Sharing data

This data is not shared with third parties.

Statistics (anonymous)

Name
_ga
Expiration
1 year
Function
Registers a unique ID with a visitor to generate data on how the visitor uses the website
Name
_ce.s
Expiration
1 year
Function
Track a recording visitor session unique ID, tracking host and start time

Marketing/Tracking

Name
_fbp
Expiration
3 months
Function
Used by Facebook to store and track visits across websites.
Name
_drip_client_9574608
Expiration
1 year
Function
Drip email cookie

Miscellaneous

Statistics (anonymous)

Usage

Sharing data

Sharing of data is pending investigation

Statistics (anonymous)

Name
_ga_3ZCB7HTL5X
Expiration
1 year
Function
Registers a unique ID with a visitor to generate data on how the visitor uses the website

Purpose pending investigation

Name
cookie-1673798539
Expiration
Function
Name
cmplz_banner-status
Expiration
365 days
Function
Name
X-Mapping-fjhppofk
Expiration
Function
Name
wordpress_test_cookie
Expiration
Function
Name
_gid
Expiration
Function
Name
_gat_gtag_UA_12799600_1
Expiration
Function
Name
wordpress_logged_in_c65fbf6168e0e96c683609c02ef673f2
Expiration
Function
Name
wp-api-schema-modelhttps://www.pnhinterestgroup.org/wp-json/wp/v2/
Expiration
Function
Name
wp-autosave-1
Expiration
Function
Name
_grecaptcha
Expiration
Function
Name
_ga_ZDHMPJQSGC
Expiration
Function
Name
acf
Expiration
Function
Name
wpEmojiSettingsSupports
Expiration
Function
Name
cmplz_consented_services
Expiration
365 days
Function
Name
cmplz_policy_id
Expiration
365 days
Function
Name
cmplz_marketing
Expiration
365 days
Function
Name
cmplz_statistics
Expiration
365 days
Function
Name
cmplz_preferences
Expiration
365 days
Function
Name
cmplz_functional
Expiration
365 days
Function
Name
wp-settings-1
Expiration
Function
Name
wordpress_logged_in_014c32977eb101e8ef7c3e9d3cce079a
Expiration
Function
Name
wpe-auth
Expiration
Function
Name
__cf_bm
Expiration
Function
Name
loglevel
Expiration
Function

Managing your cookie consent

From the options below you can manage your consent to cookies on this website.

 

Form data

We may collect the following information from any of the site’s input forms:

  • Your full name
  • Contact information including email address and telephone (if supplied)

Security

We are committed to ensuring that your information is secure. To prevent unauthorised access or disclosure we have put in place suitable physical, electronic and managerial procedures to safeguard and secure the information we collect online.

Links to other websites

Our website may contain links to other websites of interest. However, once you have used these links to leave our site, you should note that we do not have any control over that other website. Therefore, we cannot be responsible for the protection and privacy of any information which you provide while visiting such sites and such sites are not governed by this privacy statement. You should exercise caution and look at the privacy statement applicable to the website in question.

 

Become a member

If you are a clinician, academic, and/or researcher involved or interested in PNH research or care and are not currently an IPIG member, please considering applying for membership. There are no joining fees or membership dues. Learn more on our membership page and/or email your membership questions to [email protected]

Apply for membership