Professional Societies

Health care professionals who are interested in more information about PNH may find the following organizations of interest:

American Nephrology Nurses’ Association

East Holly Avenue, Box 56
Pitman, NJ 08071-0056
USA
Telephone: +1 888 600 2662
Email: anna@annanurse.org
Website: http://www.annanurse.org

American Society of Hematology (ASH)

2021 L Street NW, Suite 900
Washington, DC 20036
USA
Tel: + 1 202 776 0544
Website: http://www.hematology.org

American Society of Nephrology (ASN)

1510 H Street, NW, Suite 800
Washington, DC 20005
USA
Telephone: +1 202 640 4660
Email: email@asn-online.org
Website: http://www.asn-online.org

European Hematology Association (EHA)

Koninginnegracht 12b
2514 AA The Hague
The Netherlands
Tel: + 31 70 3020 099
Email: ehaweb.org
Website: http://www.ehaweb.org

European Network for Rare and Congenital Anaemias (ENERCA)

IDIBAPS – Hospital Clínic de Barcelona
Villarroel, 170
BLock 9, Floor 0
08036 Barcelona
Spain
Tel.: + 34 93 451 59 50
Email: enerca@enerca.org
Website: http://www.enerca.org

EURORDIS – Rare Diseases Europe

Plateforme Maladies Rares
96, rue Didot
75014 Paris
France
Tel: + 33 1 56 53 52 10
Email: eurordis@eurordis.org
Website: http://www.eurordis.org

Infusion Nurses Society (INS)

315 Norwood Park South
Norwood, MA 02062
USA
Telephone: + 1 781 440 9408
Email: ins@ins1.org
Website: http://www.ins1.org

PNH National Service

Level 3, Bexley Wing
St James’s Institute of Oncology
Leeds Teaching Hospitals NHS Trust
Beckett Street
Leeds, LS9 7TF
UK
Tel: + 44 0113 20 68625
Email: pnh.leeds@nhs.net
Website: http://www.pnhleeds.co.uk

— and —

PNH National Service

Kings College Hospitals NHS Foundation Trust
Department of Haematology
Hembleden Wing
Denmark Hill
London SE5 9RS
UK
Tel: +44 020 3299 1039
Email: kch-tr.pnh@nhs.net

 

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