PRELIMINARY AGENDA

Dates to be determined, (beginning 13:00)

(Open to independent academic and clinical members only)

1. PNH guidelines (diagnosis and treatment assessment)
2. Patient registry
3. IPIG strategic priorities, 2020-2025

Dates to be determined (beginning 08:30)

(Open to all)

1. Pathophysiology of PNH
   1. Current understanding of the pathophysiology of PNH
   2. Molecular and biologic aspects of the GPI-defect in PNH
   3. Mechanism of thrombosis
2. Diagnosis and Investigation
   1. Diagnostic testing for PNH
   2. Investigation of PNH
   3. Definition of breakthrough
3. Current Thoughts on the Complement System
   1. Recent developments in the terminal complement inhibition in PNH
   2. Proximal complement inhibition in PNH
4. Discussion / Abstracts
5. Recent data on complement inhibition in PNH (corporate presentations)
6. Posters
7. Member reception

Dates to be determined (beginning 08:30; ending 13:00)

(Open to all)

1. Aplastic Anaemia
   1. Recent insights into the pathophysiology of AA
   2. Current non-transplant management of AA
   3. Transplant/cellular therapies in AA and PNH
2. Definitions, guidelines, PNH across the globe
3. Abstracts / Discussion

Faculty

• Bing Han, MD
  Department of Haematology
  Peking Union Medical College Hospital
  Beijing, China
• Peter Hillmen, MB, ChB,PhD
  St. James’s Institute of Oncology
  Leeds Teaching Hospitals
  NHS Trust
  Leeds, United Kingdom
• Taroh Kinoshita, PhD
  Department of Immunoregulation
  Research Institute for Microbial Diseases
  Osaka University
  Osaka, Japan
• Alexander Kulagin, MD, PhD
  Pavlov First St. Petersburg State Medical University
  St. Petersburg, Russia
• Austin Kulasekararaj, MBBS, MD
  King’s College Hospital
  NHS Foundation Trust
  London, United Kingdom
• John D. Lambris, PhD
  University of Pennsylvania Perelman School of Medicine
  Philadelphia, Pennsylvania, USA
• Saskia Langemeijer, MD
  Radboud University Medical Center
  Nijmegen, Netherlands
• Regis Peffault de Latour, MD, PhD
  Research Institute for Microbial Diseases
  Hôpital Saint-Louis
  Paris, France
• Jong Wook Lee, MD
  The Catholic University of Korea
  Seoul St. Mary’s Hospital
  Seoul, Korea
• Lucio Luzzatto, MD
  Muhimbili University of Health and Applied Sciences
  Dar es Salaam, Tanzania
• Judith Marsh, BSc, MB, ChB
  King’s College Hospital
  NHS Foundation Trust
  London, United Kingdom
• Petra Muus, MD, PhD
  Department of Haematology
  King’s College Hospital
  London, United Kingdom
• Shinji Nakao, MD, PhD
  Cellular Transplantation Biology
  Kanazawa University Graduate School of Medical Science
  Kanazawa, Ishikawa, Japan
• Junichi Nishimura, MD, PhD
  Osaka University Graduate School of Medicine
  Osaka, Japan
• Charles J. Parker, MD
  Division of Hematology and Bone Marrow Transplantation
  University of Utah School of Medicine
  Salt Lake City, Utah, USA
• Stephen John Richards, PhD
  Leeds Teaching Hospitals
  NHS Trust
  Leeds, United Kingdom
• Antonio M. Risitano, MD, PhD
  Federico II University
  Naples, Italy
• Gérard Socié, MD, PhD
  Hôpital Saint-Louis
  Paris, France
• Jeff Szer, BMedSc MB BS
  Peter MacCallum Cancer Centre
  The Royal Melbourne Hospital
  Victoria, Australia
• Ronald P. Taylor, PhD
  Department of Biochemistry
  University of Virginia
  Charlottesville, Virginia, USA
• Russell E. Ware, MD, PhD
  Cincinnati Children’s Hospital
  Cincinnati, Ohio, USA
• Neal S. Young, MD
  National Heart, Lung, and Blood Institute
  National Institutes of Health
  Washington, DC, USA
• Rodrigo T. Calado, MD, PhD
  Department of Internal Medicine
  Ribeirão Preto School of Medicine University of São Paulo
  Ribeirão Preto, Brazil
• Phillip Scheinberg, MD
  Hospital São José
  Beneficencia Portuguesa de São Paulo
  São Paulo, Brazil

The registration fee for this event is £50 (GBP)

There are a number available for trainees and young investigators. More information will be available soon.

To register your interest in receiving updates about this workshop, please contact derry@collaborativeconferences.co.uk

For corporate sponsorship enquiries, please contact Heather Hollowell: info@pnhinterestgroup.org

More information in our Preliminary workshop brochure