Patient & Professional Organizations

Links and contact details for organizations who may be able to provide benefit for both patients and professionals.

Professional Societies

Health care professionals who are interested in more information about PNH may find the following organizations of interest:

PNH Patient Organizations

If you are a person who has been recently diagnosed or who is living with Paroxysmal Nocturnal Hemoglobinuria (PNH), or a family member, loved one, or care giver, you can find more information about PNH from the following organizations.

Help us expand our Resources

If you have information or resources you’d like to submit for inclusion on our IPIG website, our board will be happy to consider your submission.

Find out how to submit a resource