Website

You can help support our website by:

Identifying PNH information and resource materials that can be posted on the password-restricted member section of the website, for example:

  • Journal articles
  • Research papers
  • Presentations
  • Case studies
  • Abstracts

Helping to identify information for the public section of our website, for example:

  • Media coverage about PNH or IPIG members
  • Information about meetings relevant to PNH
  • Research grants
  • Awards received by IPIG members
  • Patient or professional organizations interested in PNH to which IPIG might link on its professional and patient resource link pages