The mission of the International PNH Interest Group is to expand knowledge of paroxysmal nocturnal hemoglobinuria (PNH), its incidence, and prevalence rates, and to consider and recommend optimal care and treatment of patients diagnosed with PNH.
Our goals are to:
- Promote public health by advancing the optimal care and treatment of patients diagnosed with PNH and related conditions
- Provide instruction, information, and training to health care providers and other interested parties on the diagnosis and treatment of PNH and related conditions
- Educate the public, policy leaders, and other stakeholders about the need for research for new and effective treatment options for PNH and related conditions, and the need for improved patient access to approved therapies and treatments