PNH Patient Meetings (US)

AA&MDSIF is hosting day-long PNH meetings for persons living with PNH and their families in 2017 in the following locations: Nashville, TN (June 24); Minneapolis, MN (July 22); Newark, NJ ( September 16); Kansas City, MO (October 14); Orlando, FL (November 4). Find more information on our Meetings for Patients page.

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Living with Aplastic Anemia, MDS, or PNH Patient & Family Conferences

22nd April 2017 – 4th November 2017

Are you a newly diagnosed PNH patient, long-term survivor, caregiver, or friend of a patient? If so, you will want to know that the Aplastic Anemia & MDS International Foundation (AA&MDSIF) will host free day-long regional Patient and Family Conferences for people living with PNH, aplastic anemia, and MDS throughout 2017 in different locations across the US.

The meetings offer people living with PNH opportunities to hear from and speak with nationally recognized PNH experts, to learn about standard treatment options as well as new therapies in development, and to connect with others who live with PNH. Speakers will also provide practical tips for living with these disorders and a safe environment where meeting participants can share experiences with fellow survivors coping with similar challenges. The weekend format makes it easy for family members and caregivers to attend at a time that’s convenient to school and work schedules.

There is no charge to attend, but advance registration is recommended. Breakfast and lunch are included.

Meetings will be held in the following locations:

  • April 22: Las Vegas, NV
  • June 24: Nashville, TN
  • July 22: Minneapolis, MN
  • September 16: Newark, NJ (Metro NYC Area)
  • October 14: Kansas City, MO
  • November 4: Orlando, FL

Visit AA&MDSIF for more information or to register.