PNH Patient Meetings (US)

AA&MDSIF is hosting free day-long PNH meetings for persons living with PNH and their families in New Orleans, LA (October 11) and Miami, FL (November 8). Also, the National Organization for Rare Disorders (NORD) is hosting free day-long PNH meetings for persons living with PNH through year-end in the following areas: Westchester, NY (October 24-25), Chicago, IL (November 1), and San Diego, CA (November 14-15).

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International PNH Interest Group 9th Annual Meeting

5th December 2014

Four Seasons San Francisco, 757 Market Street, San Francisco, California, USA

We hope that you will be able to join us this year in San Francisco, California, USA, for the International PNH Interest Group’s Ninth Annual Scientific Assembly. The meeting will be held Friday Friday 5 December 2014.

AA&MDSIF PNH Grant Recipients

Congratulations to AA&MDSIF 2014 PNH grant recipients Patrizia Ricci, PhD, in the Department of Clinical Medicine and Surgery at the University of Naples, Italy, and Chao-Yie Yang, at the University of Michigan.

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Rare Disease Day 2014

28th February 2014

Worldwide

IPIG is a proud supporter of Rare Disease Day 2014, coordinated by EURORDIS.